Poppy – When You Were With Me (2023) CD Single

Beyond Records & The BDFA

Poppy, who is 15, wrote the song about her precious memories of her two cousins, Ellie Mae and Caleb, who both passed away from CLN2 Batten disease aged 6 and 9.

It is a wonderful song and a beautiful tribute to the children. We know that it will really help to raise awareness.

The single has been produced by our amazing friend and supporter David McGovern, along with his good friend Paul Fairbairn, who wrote the music and arranged the song.

David will be releasing the single on his ?Beyond Records? record label in time for the Christmas period.

We are so grateful to David for his tremendous support of the BDFA and the Batten community & we really hope that everyone will get behind the single and help to spread the word!